What We Do
Community-based Collaborative C.A.R.E.
Our Mission: Eliana's Light supports families with children who have complex medical conditions by providing a community-based collaborative approach to pediatric care that’s focused on their whole health and well-being — a focus that makes the whole family feel better.
We engage and collaborate with community members (e.g, medical and integrative care specialists, therapists, volunteers, donors, government agencies, support groups, and others) to support families by providing them with the personalized care they need — access to care givers, educational materials, and customized gift bags — we call these community members “stars". These “stars” come together to comprise what we call “Constellations of Care” for a family”.
Each family’s Constellation of Care is unique and evolving —as a family’s needs change so do their “stars”. These stars address the physical, mental, emotional, and financial needs of each family member.
Through this approach, we help to address and reduce the stress, pain, fear, trauma, anxiety, and depression that many children diagnosed with complex medical conditions, as well as their caregivers and siblings, often experience. For an overview in Amharic, click here. Arabic, click here. Spanish, click here. French, click here.
Our Vision: We are a go-to health and wellness support system and resource for families that have children with complex medical conditions. We improve each family member’s quality of life, wellness and well-being. By extension, we help the whole family unit. We recognize each member of a care team and their roles in transforming today’s health care system into one that focuses on the whole health of the entire family through collaborative community-based support.
Our Approach: We take a personalized approach and use a Policy, Systems and Environment (PSE) lens while doing our work. This method recognizes the reality in which families live, work, attend school, and receive medical attention. It addresses the policies (governmental and within institutions), systems (within institutions and a community), and the environment (within institutions and a community) that affect a person's whole health and well-being. A PSE approach is a "long-term approach that is designed to make a sustained improvement in community health, and builds on the cultural and social assets of the community. It has a greater chance of success, and empowers communities to take part in the process and advocate for their own health. It also fosters strategic public-private partnerships to improve the health of the community." (source)
This is how we c.a.r.e.
Connect: We connect to families where they are through our Eliana’s Light Constellation Kits, learning events, tip sheets, and communications channels. We also connect families to resources, specialists, other organizations, and information that can help reduce their physical, mental, emotional, spiritual, and/or financial stress. We build trusting, compassionate relationships with them through our shared humanity while we develop “Constellations of C.A.R.E.” through the collaborative community service activities we organize.
Advocate: We advocate for Integrative Medicine (IM) and integrative care services within pediatric medical facilities and as part of standard medical care, therapy programming and research initiatives. For example, we collaborate with hospital staff and with physical, occupational, feeding, and speech/language therapists on ways to incorporate mindfulness and integrative care services into their programming.
Raise Awareness: We raise awareness on whole health and related programming, approaches and strategies that help reduce stress, anxiety, pain, and fear, especially in regards to medical care and treatments.
Exchange: We serve on various advisory committees and manage one directly in order to exchange information and resources with local specialists in areas relevant to our mission.
We C.A.R.E. alongside collaborators, together forming Constellations of CA.R.E. in a community for families with children who have complex medical conditions. We accompany families for as long as they'd like to stay connected to Eliana's Light. When the family's needs change, we help guide them to other support services that are relevant to their new needs. We do not provide technical expertise directly; we instead help connect caregivers to experts who are part of Constellations of C.A.R.E. within our communities.
We Invite You To Read Our First Annual Report & Our Second Annual Report. Please Share Your Feedback With Us.
Your ideas, suggestions and reflections mean a lot to us! Please take this survey and/or email us at firstname.lastname@example.org. Thank you!
What Are Eliana's Light's Goals for 2019?
We invite your engagement and collaboration throughout 2019 as we:
bring more integrative care services and a whole health approach to care to more families in DC, Maryland, and Virginia while connecting them to essential resources, information, and specialists that can support them.
raise awareness on and enhance understanding in integrative care services and holistic health care approaches that facilitate, support and promote whole health.
connect to collaborators that want to work synergistically with us to build an evidence base of effective integrative care approaches for children with complex medical conditions and their caregivers.