We believe strongly in collaboration and the importance of knowledge exchange in order to build on proven effectiveness, prevent the re-creation of the wheel, raise awareness on "what works", and contribute to the evidence base. We are thus sharing resources and research, listening to families and our partner organizations, and participating on the following advisory committees:
- Community Advisory Board for the Clinical & Translational Science Institute (CTSI) of Children's National Medical Center and The George Washington University;
- Race for Every Child Planning Committee of Children's National Medical Center;
- Parent Advisory Committee for Palliative Care at Children's National Medical Center;
- Parent Advisory Committee for Integrative Care Services at Children's National Medical Center;
- Pediatric Palliative Care Research Special Interest Group; and
- Advisory Committee for Healwell
Eliana's Light's Online Learning Series for Caregivers of Children With Complex Medical Conditions. Join us on this journey of learning and exploration. This learning series will address topics related to whole health and the realities of caring for a child who has a complex medical condition. Please email us to let us know topics you'd like to learn more about via an interview with a specialist: firstname.lastname@example.org.
1. "6 Stress Relief Techniques for Caregivers of Children With Complex Medical Conditions". A conversation with Dr. Anne Berkeley, a licensed and board certified naturopathic physician who specializes in holistic and natural medicine. Dr. Berkeley runs a private practice in Washington, DC called Medicine To Thrive.
2. "Meet Christina Spencer, Mom Of A Child With A Complex Medical Condition". This "Conversation With A Caregiver" shares some of the reality families experience when one of their children has a complex medical condition. Christina's son, Memphis, has been in the Cardiac Intensive Care Unit (CICU) for all 8 months of his life. The Spencers have a 2 year-old daughter as well, and are trying to balance their children's needs as well as their own.